Raising Awareness on Epilepsy: A Call for Social Inclusion

by

Bhupendra Singh Chundawat

Raising Awareness on Epilepsy: A Call for Social Inclusion

New Delhi, February 9: On the occasion of International Epilepsy Day, the Ministry of AYUSH in India emphasized the need for awareness, understanding, and social inclusion for individuals living with epilepsy. The ministry urged society to collectively reduce the stigma associated with epilepsy and promote informed, compassionate conversations.

Epilepsy is a common neurological disorder characterized by seizures. During these episodes, individuals may experience convulsions, frothing at the mouth, and upward eye movement. In most cases, epilepsy can be effectively managed with medication and proper treatment. However, in many regions of the country, social and cultural factors complicate this issue. Many people associate epilepsy with evil spirits, past sins, or supernatural forces, leading to inappropriate treatments, harmful practices, and stigma for those affected.

Moreover, epilepsy adversely impacts education, employment, marriage, and social life. The employment situation is particularly alarming. A survey in Kerala revealed that 58% of individuals with epilepsy were unemployed, compared to just 19% among the general population. Contributing factors include the risk of seizures at the workplace, lack of education, fatigue from anti-epileptic medications, and frequent absenteeism.

Employers often hesitate to hire individuals with epilepsy. The social stigma associated with seizures can result in lower-paying jobs or unemployment. In many cases, individuals lose their jobs altogether.

While improvements in education and social status have occurred over time, perceptions, stigma, and discrimination surrounding epilepsy have not significantly changed, leading to additional health issues.

Thanks to the efforts of the Indian Epilepsy Association, the Indian judiciary has clarified that epilepsy should not be classified as a mental illness. The practice of divorce due to epilepsy should be discouraged. Experts believe that raising awareness is essential to alleviate the burden of epilepsy. This includes better care, prevention, public awareness campaigns, and incorporating patient care into existing programs.

Leave a Comment

BREAKING NEWS: